Here is my night on the eve of a new year:
champagne, lobster...
and beep, beep, beep
me: what does that beep mean?
Tom: I'm low
Me: what's your number?
Tom: 50, but I just had some juice,I'll be fine
Me: OK, so I'll get dinner ready
Tom: No, not yet. I'm not hungry.
Me: ok, when do you want to eat?
Tom: I'll let you know when
Me: :-\
Married to a man who has Type 1 diabetes for more than 30 years teaches a woman that the good times are great -- but a low sugar episode can explode into a mess that touches every part of your life.
Thursday, December 31, 2015
Sunday, December 13, 2015
Everday Lows and now highs
Is this trend changing or I just notice it more?
In one sense things are better. About 20 years ago, Tom suffered from severe low sugar episodes around 2 am. His reponse was physical and scary.
Now, for the last 5 or 6 years, his lows are not so dramatic -- the continuous glucose monitor notifies him (and me) when his sugar is going low. Se for the most part, they are caught before they get to that extreme.
On the other hand, they occur almost like clockwork when he gets home from work -- 6ish. His doctor, his dietician, and I all tell him that he needs some carbs in the late afternoon. But he complains that he is just not hungry and does not want to eat. (I believe he is also worried about going too high.)
Regardless we handle it differently now -- he is just grumpy and I don't react so strongly either. I simply hand him a glass of juice and start making dinner.
Not good, but manageable.
Now he is experiencing more significant episodes of high sugar. Or is it just that I know about it more often due the cgm -- and Tom lets me in a bit more, telling me what the beeping is telling him.
Last night we had a big family dinner at our house and I heard beeping from his equipment for hours. I don't think anyone else heard it or if they did they didn't know what it was. At one point, someone asked me if the microwave was beeping. It wasn't but I don't whether it was Tom's cgm or his pump -- and he wasn't sharing any information with me. He also didn't seem to be doing anything about it.
None of this is the scary episodes of yesteryear -- but have almost become one of the annoyances of daily living. I know, I know, imagine how much worse it is for him! the difference is that he has control over what to do about it and I don't. I try very hard to separate myself from the need for response and/or arguing about it
This is the life of a "compliant" diabetic's wife. Tom is very skinny now -- while some of us try to fend off the extra pounds that come with eating yummy food, he simply says he is not hungry and doesn't eat. AND he is getting so much fussier about what he eats. Right now I am making two vegetables for dinner one for me and one for him (his is always the same salad every night). I won't be surprised that there will come a day where I make two main dishes one for me and a different one for him. I am not saying that the salads aren't healthy but they are so bland and very boring. AND, they are always cold - sometimes I like hot veggies, especially when it is cold outside.
Ok, that is the end of my tirade.
Regardless of all of that, life is going along nice and smooth. I relish these days when we are boringly quiet.
Best of the season,,
Tom's Wife
In one sense things are better. About 20 years ago, Tom suffered from severe low sugar episodes around 2 am. His reponse was physical and scary.
Now, for the last 5 or 6 years, his lows are not so dramatic -- the continuous glucose monitor notifies him (and me) when his sugar is going low. Se for the most part, they are caught before they get to that extreme.
On the other hand, they occur almost like clockwork when he gets home from work -- 6ish. His doctor, his dietician, and I all tell him that he needs some carbs in the late afternoon. But he complains that he is just not hungry and does not want to eat. (I believe he is also worried about going too high.)
Regardless we handle it differently now -- he is just grumpy and I don't react so strongly either. I simply hand him a glass of juice and start making dinner.
Not good, but manageable.
Now he is experiencing more significant episodes of high sugar. Or is it just that I know about it more often due the cgm -- and Tom lets me in a bit more, telling me what the beeping is telling him.
Last night we had a big family dinner at our house and I heard beeping from his equipment for hours. I don't think anyone else heard it or if they did they didn't know what it was. At one point, someone asked me if the microwave was beeping. It wasn't but I don't whether it was Tom's cgm or his pump -- and he wasn't sharing any information with me. He also didn't seem to be doing anything about it.
None of this is the scary episodes of yesteryear -- but have almost become one of the annoyances of daily living. I know, I know, imagine how much worse it is for him! the difference is that he has control over what to do about it and I don't. I try very hard to separate myself from the need for response and/or arguing about it
This is the life of a "compliant" diabetic's wife. Tom is very skinny now -- while some of us try to fend off the extra pounds that come with eating yummy food, he simply says he is not hungry and doesn't eat. AND he is getting so much fussier about what he eats. Right now I am making two vegetables for dinner one for me and one for him (his is always the same salad every night). I won't be surprised that there will come a day where I make two main dishes one for me and a different one for him. I am not saying that the salads aren't healthy but they are so bland and very boring. AND, they are always cold - sometimes I like hot veggies, especially when it is cold outside.
Ok, that is the end of my tirade.
Regardless of all of that, life is going along nice and smooth. I relish these days when we are boringly quiet.
Best of the season,,
Tom's Wife